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On February 28, 2011, Palin Rose Meyer was born, shortly after her birth she was diagnosed with Prader-Willi Syndrome (PWS).
She is the only child in St. Johns County, Florida with this very rare condition. She is joined by big brother, Quinn (2 years old) and the furriest member of the family, Rosco.


It is estimated that PWS affects one in 12,000 to 15,000 births. This syndrome affects both males and females and all ethnic groups. Currently there is no cure to date, no medications or procedures are successful in staving off the relentless hunger.
However, growth hormone has been effective in increasing height, improving body mass and metabolism, and boosting strength, energy and cognitive development.

Please help us in our efforts to raise money for the Meyer family and awareness for Prader-Willi Syndrome.

To learn more about PWS visit the website of PWSA (USA) at: www.pwsausa.org

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ABOUT PRADER-WILLI SYNDROME (PWS)

  • Prader-Willi is a complex syndrome affecting appetite, growth, metabolism, cognitive function, and behavior.
  • The hallmark characteristics of PWS that typically begin around age three to five include:

    ?An insatiable appetite that cannot learn to be controlled because of a dysfunction of the hypothalamus region in the
    brain.

    ?Rapid weight gain on few calories because of a malfunctioning metabolic system. Therefore a closely monitored diet must be a maintained to restrict calorie intake.

    ?Ironically, babies typically show no interest in eating and have difficulty sucking, breathing and swallowing. This is
    known as “failure to thrive?stage.

    ?Those with PWS need strict external controls, including access to food. Possibly to the extent of padlocking food.
    This may be necessary as a life-saving intervention. Children as young as three have died of weight related
    problems. These problems are life threatening and include perforation in the lining in the stomach from sudden eating
    binges.

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LINKS

  • Renaissance Hotel
  • Slammer & Squire
  • Prader-Willi Syndrome Association

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