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On February 28, 2011, Palin Rose Meyer was born, shortly after her birth she was diagnosed with Prader-Willi Syndrome (PWS).


QUESTIONS? PLEASE CONTACT KELLY HARRIS ?904-940-8646

ABOUT PRADER-WILLI SYNDROME (PWS)

  • Prader-Willi is a complex syndrome affecting appetite, growth, metabolism, cognitive function, and behavior.
  • The hallmark characteristics of PWS that typically begin around age three to five include:

    ?An insatiable appetite that cannot learn to be controlled because of a dysfunction of the hypothalamus region in the
    brain.

    ?Rapid weight gain on few calories because of a malfunctioning metabolic system. Therefore a closely monitored diet must be a maintained to restrict calorie intake.

    ?Ironically, babies typically show no interest in eating and have difficulty sucking, breathing and swallowing. This is
    known as “failure to thrive?stage.

    ?Those with PWS need strict external controls, including access to food. Possibly to the extent of padlocking food.
    This may be necessary as a life-saving intervention. Children as young as three have died of weight related
    problems. These problems are life threatening and include perforation in the lining in the stomach from sudden eating
    binges.

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LINKS

  • Renaissance Hotel
  • Slammer & Squire
  • Prader-Willi Syndrome Association

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